FOXG1 operates across the UK, working to bring hope to individuals and families affected by FOXG1 syndrome. We raise vital funds to drive research into treatments that can improve quality of life, as well as to deepen scientific understanding of this rare and complex disorder. By sharing research findings openly, we aim to benefit the wider public, raise awareness of FOXG1, and build greater understanding and compassion for the syndrome among communities, healthcare professionals, and social care services.